Dr. Kathy Warren on DIPG, Michael Antonellis of National Brain Tumor Society

CCTR presents Dr. Kathy Warren, top researcher in pediatric neuro-oncology at the Center for Cancer Research at the National Cancer Institute (NCI), who discusses the history of DIPG research and the nature of this strange and misunderstood tumor, challenges to treatment, and hopeful new lines of research for effective therapies to be developed.  We were treated to a brief lesson in pediatric brain tumors by one of the worlds greatest experts on the subject of DIPG, diffuse intrinsic pontine glioma.  Dr. Warren stressed the importance in parent advocacy for encouraging world-wide scientific collaboration in the research.  We focused brain tumors and advocacy for the 2nd half of the show with Michael Antonellis, who described the unique opportunities that the National Brian Tumor Society (NBTS) for those called to advocacy, encouraging participation in the upcoming "Head for the Hill Days" in Washington DC.  NBTS advocates for the need of research for both adult and pediatric brain tumors, and explained the many differences complicating the treatment landscape.

 

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About Janet


Blessed with varied interests and an artistic and musical upbringing, Janet had health challenges throughout her young adult life. Despite these she graduated Cum Laude from Wellesley College with an award of distinction for acting, and had also been a champion equestrian. She began a family with her husband Barry later in life, and had finally found happiness with daughter Sophie-Marie (3/12/06) and then baby (Jack 8/30/08). Five weeks after his birth, the family escaped a wildfire in which all worldly possessions were lost. The family relocated in December of 2008 to Agua Dulce CA where they currently reside.

Jack began to have unsettling symptoms at the age of 3; he was taken to Children's Hospital Los Angeles and was diagnosed with DIPG, or diffuse intrinsic pontine glioma, on Friday Oct. 28, 2011, indisputably the darkest experience of Janet's life. The outrage of it made her determined to find the good in the situation, and she asked God to "Put me to work!" After Jack's death, she remained determined to start working to find solutions to DIPG and incorporated Jack's Angels at the end of 2012; the Foundation began its work in 2013. Despite the fact that DIPG is responsible for the majority of brain tumor deaths in children, she had been told there were no solutions for Jack because "the numbers aren't great enough for investors." This remains the primary motivation in her advocacy work, to prioritize children's lives in our medical system in the United States.


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