Hope Over Despair: Mariah Olson, Neuroblastoma Survivor

Mariah Olson was diagnosed in 1980 with neuroblastoma at the age of one year, and is a living testament as a survivor to the difficulties that so...

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The Difference of a Decade: A Conversation with Childhood Cancer Advocate Jonathan Agin

This edition of Childhood Cancer Talk Radio gives a personal look at the landscape of childhood cancer advocacy over recent years. For this, I have...

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A Look Back, and Forward: Advocacy with Children's Cancer Cause 2021

Today's show is a recap of recent advances in childhood cancer advocacy and reiterates the basic facts about childhood cancer for which we strive to...

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Life Beyond DIPG: Inspiration and Avocation

In this edition of Childhood Cancer Talk Radio, members of the DIPG Advocacy Group Gerry Tye (Syndey, AUS), Katherine Bader (Rhineland, Missouri) and...

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LIVING RESEARCH with Rachna Prasad and Jace Ward

A Class of 2020 graduate from UCLA in anthropology, Rachna Prasad is a working on a Masters program in clinical research at the University of Zurich,...

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Juliette's Journey of Healing and Hope

Marti Jaenke Dexter tells the story of her youngest daughter of four children, Juliette, described sweetly as her “gift from God.” She...

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Dr. Vibhakar at Children’s Hospital Colorado; Morin Family Braves the Holidays after Recent Loss

“After symptoms that appeared suddenly and two visits to the pediatrician, Luke Morin was taken to the Emergency Department at Children’s...

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No Time To Lose: Pediatric Brain Cancer and the DIPG Fast-Track with Lisa and Jace Ward

"While we wait," declared Jace Ward from Wamego Kansas, to an NIH Symposium on genomic data sharing in September, 2019, "DIPG won't wait! It won't...

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Oncoheroes: Advancing New Therapies for Childhood Cancer

Ricardo Garcia, CEO, Cesare Spadoni, COO, and Jonathan Agin, Head of Patient Advocacy for Oncoheroes Biosciences join us to discuss this relatively...

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Childhood Cancer Caucus Summit 10th Anniversary Special Edition

Thursday, Sept. 26 show features interviews with key individuals with important information about CureFest, the rise of childhood cancer awareness,...

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The House that Hope Built in Zurich, with Philip Manduca

Upon the diagnosis of his daughter in 2015 with the deadliest pediatric brain cancer DIPG, Philip Manduca, a financier residing in London, UK, was...

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Kier's Kidz and Songs of Love

Larry Perfetti, President of Kier's Kidz, a 501(c)3 charitable organization in Highland Park, NJ, dedicated to helping children with cancer and their...

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The Pepper-Neely Act of 1946 and the Fitzgerald Report of 1953, with Randy Hinton

How did we get here, with a medical research system teaming with money and activity, but so few solutions and options for deadly cancers, especially...

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Meet "Tattoo Tom" Mitchell: Father, Activist, Founder of Still Brave Foundation

Following the death of his daughter Shayla in 2009 from Hodgkin's Lymphoma Tom dedicated his entire life to providing non-medical support to children...

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“Moonshot4Kids” at Monje Lab: DIPG Families Advocate for Increased Pediatric Cancer Research Funds

June 7, 2019 | Mia Brozovich Nacke June 7, 2019 | Mia Brozovich NackeCOMMUNITY OUTREACH, EVENTS, PEDIATRICS, RESEARCH AND INNOVATION.Families who have...

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To the Ends of the Earth: Juju's Journey with Mark Hyde

Our show features a window into the experience of a father, Mark Hyde, who literally chose to go to the ends of the earth for his daughter, honoring...

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A Family Affair: Kendal Brown and her Family in South Carolina

Sandra Brown joins us on Childhood Cancer Talk Radio from Dillon, South Carolina to share the story of her beautiful, 10 year old granddaughter who is...

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From Advocacy to Activism: DIPG Advocacy Group Salutes Cannonballs Across America

May 2019 has witnessed important advances in pediatric brain cancer awareness, advocacy, and the fulfillment of a life-time dream by a dedicated...

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Interning at Children's Cancer Therapy Development Institute

Cynthia Martucci and Angelina Shao begin internships at cc-TDI, Children's Cancer Therapy Development Institute as undergraduates for the summer of...

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Truth in Pictures, Reality in Words: The Extraordinary Photo-Journalism of Moriah Ratner

A recent graduate of Syracuse University's School of Photo-Journalism, Moriah Ratner tells the story of the lovely Lola Munoz, a thirteen year old...

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Love for Olivia, A Legacy of Hope

Chance Mazzell and his wife Heather share with us the story of their daughter Olivia and the places that DIPG, diffuse intrinsic pontine glioma, has...

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Sara's Cure Has Hope with CC-TDI's Lissett Bickford Ph.D.

Sara's Cure is a grassroots, race-against-time campaign focused on funding critical research to find a cure for Clear Cell Sarcoma. Lissett Bickford,...

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Dogs Prove to Be Kids Best Friend, with Dr. Bernard Seguin and Ulrike Szalay

According the the Genomics Institute, 84% of dog DNA has human counterparts, so we suffer many of the same diseases, including most cancers. Dogs...

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Colorado Treasures: The Morgan Adams Foundation and Cops Fighting Cancer

Denver CO--Morgan Adams Foundation co-founder Joan Slaughter joins us to share this organization's 20 year history of advancing the clinical trial...

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Research Edition #3: Hepatoblastoma and the Foundation for Addie's Research

After months of frustrating ER visits for high fevers, Adelaide 'Addie' was diagnosed in November 2015 with Hepatoblastoma, a rare pediatric liver...

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Bill Kohler: When Suddenly There's No Time.

From a State Tax Measure bringing needed funds to pediatric cancer research, to leading in the country-wide movement for a DIPG Awareness Day,...

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Barbara Salzman and The Jester

Barbara Saltzman joins us from Palos Verdes CA, home of The Jester & PharleyTM Phund, the charity that grew out of her late son David's...

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Research Series Part II: Osteosarcoma and the Trey Foote Foundation

The second edition of Childhood Cancer Talk Radio's Research Series with Children's Cancer Therapy Development Institute features an osteosarcoma...

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Urgency of Need: Awareness and Research for Pediatric Brain Cancer, with Steven Healey

Steven Healey shares the inspiration behind the foundation, his beautiful, forever-5 year old daughter Brooke who's life lasted just eight months post...

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CC-TDI Research Series I: DIPG Tumor Cell Hotel

Dr. Charles Keller, Scientific Director of the Children's Cancer Therapy Development Institute, joins us with Dr. Anju Karki, post-doctoral fellow and...

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The Pediatric Cancer Research Foundation with Jeri Wilson

Jeri Wilson, Executive Director, has been with PCRF (Pediatric Cancer Research Foundation) since September of 2011 and has taken this organization...

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Outside the Box Part II, Jessica Doeden DIPG Survivor, Randy Hinton on Causes and Conditions

We follow-up and finish our conversation with Randy Hinton, father to Hayley who was diagnosed with DIPG (brainstem glioma-diffuse intrinsic pontine...

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The Children's Cause for Cancer Advocacy with CEO George Dahlman

As the Chief Executive Officer of Children's Cause for Cancer Advocacy, George Dahlman is responsible for the strategic management and operations of...

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Outside the Box with No Return: The Extraordinary Story of Hayley Hinton

Randy Hinton joins us from Summerville SC to discuss the circumstances surrounding his daughter Hayley's diagnosis with brain cancer and the...

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Every Voice Matters: The Power of Initiative in Advocacy

Wendy and Dean Fachon of Rhode Island join us to talk about state legislation, national resolutions and the legacy of their son Neil, making a strong...

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DIPG Reality and Research: Hopelessness and the Pathway to a Cure

Morally, rationally and in every sensible way, the experience of DIPG, diffuse intrinsic pontine glioma, inspires bereaved parents to fight for others...

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#PeytonManningMeetJackson!

Jackson is a boy from Colorado fighting a devastating foe: DSRCT. Desmoplastic Small Round Cell Tumor (sarcoma) is a frequently misdiagnosed, rare...

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"The Promise", with Donna Speckhard

Donna Speckhard brings us a sneak-peek of the upcoming docuseries "The Promise" chronicling the experiences of children with cancer and their families...

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A Closer Look with Ellyn Miller

The Gabriella Miller Kids First Research Act, first signed into law in 2014, is perhaps one of the most important pieces of legislation and resulting...

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Why DIPG? The One to Beat from Awareness to Research

DIPG is front and center with researchers, devastated by the picture painted by the statistics of this killer of very young children, and with...

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What If Your Child Lives When Expected to Die?

No matter how much time one may have with a child diagnosed with terminal cancer, the stresses of life can be extreme. Natalie Avila was diagnosed...

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Kimberly Beauchamp: The Hopes and Perils of Making DIPG History

We get a first-hand look inside the controversial treatment program in Monterrey, Mexico, to which many DIPG families flock with the kind of...

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Jodi Jacobs and the "Support DIPG Awareness" Petition

What is it like when there is literally nothing they can do, when your child is ok one day, but after the next might never walk again? Jodi Jacobs...

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Project Haystack Part II

Molly Lindquist, CEO of Children's Cancer Therapy Development Institute in Beaverton OR, joins us to share her personal story of cancer survival and...

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With-Purpose Foundation: Kid-Power in Awareness and Fundraising

The charitable organization With Purpose, in Minneapolis MN, was founded by Erin Benson in loving memory and trust of her son Sam Lee who perished to...

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Part I: "Project Haystack" at Children's Cancer Therapy Development Institute

Dr. Charles Keller, Scientific Director of the Children's Cancer Therapy Development Institute, describes for us in opening the show, the ongoing work...

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"The Heart of Luminous", by Luna Zin: Debut of an Author

Luna Zin joins us from her Utah home to discuss her first book, "The Heart of Luminous", inspired by her research in the childhood cancer community,...

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Ellie Waters: Beating Alveolar Rhabdomyosarcoma, Surviving Teen Life

Ellie Waters visits with us from the UK to give us an update on her progress, cancer-free, and also gives a clear picture of the realities of teen...

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Tamlin Hall (AUS) Beating BPDCN, and her Blog at BraveryBox

Tamlin Hall and her mum Kerrilee visit with us to share Tamlin's story of surviving BPDCN, and the new network of hope and support that has grown from...

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Chase Jones and the Biden Cancer Initiative

Chase Jones is a survivor of childhood brain cancer, founder of Vs. Cancer Foundation, and is organizing community leadership around the country for...

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Kortney Rose Foundation Pioneers Fundraising for Pediatric Brain Cancer

Kristen Gillette, Executive Director of the Kortney Rose Foundation in Oceanport, NJ, joins us to discuss the abrupt loss of her daughter Kortney in...

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Princess Keira's Dream: One Girl's Battle, A Worldwide War

Emma Wrenn joins us from the UK to discuss her new book about the life of her brave daughter Keira, who was one of a handful of children who pioneered...

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Oncoceutics: Real-Time Solutions for Cancer Treatment

Joshua Allen, Senior Vice President of Research and Development at Oncoceutics joins us to explain a novel group of compounds called imipridones that...

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A Legacy of Love and Hope: Julianna Sayler Foundation

Stacie Sayler of Walla Walla Washington tells the story of a happy family of 5 on a small farm, Eric Sayler the father is a pastor, and mom...

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"Lighten Our Darkness": Two Moms Advocate for Others from Life's Most Tragic Loss

Kirsten Finley and Jamie Franzini, both coincidentally from the same Congressional District in Florida--that of Rep. DeSantis (R-FL-6)--discuss their...

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Hike 4 Pennies: Uniting the Childhood Cancer Community

Ginny McLean, Communications and Outreach Director for Swifty Foundation joins us to discuss the Hike 4 Pennies program with hiker Erick Montgomery...

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STRAIGHT TALK with the Fachons about Neil's Incredible DIPG Journey

Both parents Dean and Wendy Fachon join us to share the story of their son Neil Fachon's diagnosis of DIPG, one of the deadliest pediatric brain...

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What We Do when there are NO OPTIONS, with Melany Knott

What would you do if your doctors provided no solutions for your child, when nowhere in your country was hope for survival inferred by treatment?...

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Zoe's Butterfly Foundation, Part I

Melissa Castango joins us to share the story of her daughter Zoe, diagnosis with brain cancer and the beginnings of her journey with Zoe's Butterfly...

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Ken Bettencourt and 10,000 mi for Heroes and Angels

Heroes and Angels in Little Rock, AR is the real deal: a small, grassroots organization doing everything humanly and angelically possible to support...

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Fly like a Superhero with Smile High Club

Jim Churchman joins us to share the story of the Smile High Club, a non-profit organization dedicated to putting smiles on faces and hope in the...

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Theodore Lives with Juvenile Batten CNL3 Disease

Nurse and family confidante Nick Maroulis, and brother of Theodore Vasilis Ntoumas join us to discuss Batten disease and the effects of fatal, rare,...

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NORD Advocates for Rare Diseases

Paul Melmeyer, Director of Federal Policy for NORD, the National Organization for Rare Disorders,joins us to discuss NORD's advocacy activities at the...

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Global Childhood Cancer Advocate Gerry Tye in Sydney, Australia

Gerry Tye joins us from Sydney Australia to discuss the changes in the childhood cancer community over the past six years. A father of three boys,...

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Paul 4 the People: A Personal Journey of Advocacy through Involvement

A long-time advocate for children with cancer, Paul Miller of Littleton, CO shares with us his story of advocacy through fundraising events, routinely...

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FACTOR 2018: MIB Agents Osteosarcoma Mission Full Speed Ahead

Ann Graham, CEO of MIB Agents--Make-It-Better-Agents--and osteosarcoma survivor, joins us to discuss the great strides in improving outcomes for...

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Shane and Shawnee Doherty: The Story behind "Hope Through Hollis"

Shane and Shawnee Doherty discuss frankly their experience with their son Hollis who was diagnosed with DIPG in March of 2016. DIPG, diffuse intrinsic...

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Angie and Steven Giallourakis and the Steven G. AYA Cancer Research Fund

Two-time cancer survivor Steven Giallourakis joins us with his mother Angie to share their experience which inspired the Steven G. AYA Cancer Research...

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"My Dog Named Hope" Comforts Children and Supports Research

The new children's book "My Dog Named Hope" is about a special girl, her amazing dog, and a family's journey through childhood cancer. The story was...

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Annette and the Carson Leslie Foundation Host the Golden Toast

Annette Leslie is a mom who has been through the harrowing experience of losing her son to medulloblastoma in 2010. His extraordinary life and...

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The Triumph of Team Ellie

Ellie Waters was diagnosed with alveolar rhabdomyosarcoma at the age of 14 and endured the heavy-duty treatments that this frightening disease...

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Nicole Vathy and "Baby" Shawn face DIPG with the Golden Niagara Falls of September

Nicole Vathy, single mom of seven, shares her journey with her youngest, Shawn, who has been diagnosed with diffuse intrinsic pontine glioma. Shawn...

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More Life and Love to Remaining Days

Suzanne Gwynn has served as a critical care nurse for more than 35 years, in both the United States and Canada. During the first decade of her career,...

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Swifty Foundation: Cure Pediatric Brain Cancer

Al Gustafson is on the Advisory Council of the Children's Brain Tumor Tissue Consortium and serves on the Board of Swifty Foundation, among several...

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BPDCN Update with Caitlin and Kelly Lee

Caitlin joins us with her mom Kelly to update her progress since treatement for BPDCN, Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare and...

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With Love and Hope from Mexico

From Monterrey Mexico, childhood cancer advocate Christina Wascher joins the show with Kristoffer Nordstrom, father to 5-year-old Linnea who is...

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Advocacy, Research, and TNCI with Beth Anne Baber

"Eight years ago, a 15 month-old little boy with platinum blond ringlets and bright blue eyes was diagnosed with high-risk neuroblastoma, a childhood...

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America’s Foremost Runner-Advocates for Children with Cancer

Live from Roy's 100 mi Run for Christopher in Santa Clarita, CA, Roy Wiegand joins us for news on his progress, the support of the local community for...

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CannaKids with Tracy Ryan

Sophie Ryan, daughter of Founder and CEO of CannaKids Tracy Ryan, inspired the birth of CannaKids. Sophie was diagnosed at 8 1/2 months old with an...

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Hope for Osteosarcoma Research: #BecauseofDaniel

Professionally, Theresa Beech has had 20 years of experience as a space engineer designing satellite mission ground systems. She has worked as a...

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Batten Juvenile Disease CLN3, a Genetic Nightmare

Christina Bouraimi (mother) and Nick Maroulis (nurse) join us on CCTalkRadio from Athens, Greece to tell the story of a brave young man Theodore who...

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Roy Wiegand: Going the Extra Mile for Kids

On April 13 2017 Childhood Cancer Talk Radio interviewed Roy Wiegand of Burbank CA, suburb of Los Angeles, a local free-lance musician with an...

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Elizabeth Psar: Mom on a Mission Against DIPG

CCTR interviews Elizabeth Psar, an attorney with a focus in Juvenile law now on a mission against DIPG with the Julia Barbara Foundation. The...

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National Cancer Institute’s Office of Advocacy Relations: A Conversation with Patrick Mahoney

Childhood Cancer Talk Radio interviews Patrick Mahoney from the Office of Advocacy Relations (OAR) at NCI. The March 16 discussion included a brief...

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BELAC Foundation: Caleb Williams Legacy

Amperell Williams joins us on CCTR to talk candidly about her experience with her son, Caleb, who was diagnosed at the age of 5 with T-cell...

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Vesselon: Addressing the Challenges of Brain Cancer with Non-Invasive Technology

Rhodemann Li and Clayton Larsen, co-founders of Vesselon describe the unique blending of two technologies into one platform effectively solving the...

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"Talking Advocacy" with Danielle Leach

Today's guest, Danielle Leach, gives the childhood cancer community helpful information about advocacy, being a parent of a child with cancer,...

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BethAnn Telford: Around the World in 7 Days for Brain Cancer

The great adventure that was the 2017 World Marathon Challenge is shared with our listeners in a big-hearted interview with BethAnn Telford, brain...

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MaxCure and the Run for the White House

Brian Jones, creator of the Run for the Whitehouse for Childhood Cancer on Facebook joins us to describe the beginnings of the program, what it has...

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DIPG Across the Map

Jenny Mosier, Executive Director of the Michael Mosier Defeat DIPG Foundation joins us to discuss a 50-State Project for DIPG, calling for volunteers...

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#RunfortheKids and the Quest of Christopher Winters

CCTR interviews Christopher Winters, Chief of Staff to PA House of Representatives Honorable Member Tom Caltagirone about his extensive experience in...

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BethAnn Telford and the World Marathon Challenge

CCTR interviews BethAnn Telford, originally from Harrisburg, PA and now living in Fairfax, VA; she is a brain cancer survivor and ultra-distance...

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Dr. Adam Green, HGG (high-grade glioma) Research at UC Denver

Pediatric brain tumors are the leading cause of death in children with cancer, of which DIPG and HGGs (high-grade gliomas) represent a significant...

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The Children's Cause for Cancer Advocacy

CCTR interviews George Dahlman, CEO of the Children's Cause for Cancer Advocacy, the United State's Premier Childhood Cancer Advocacy organization....

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CureSearch CEO Laura Thrall

CCTR interviews Laura Thrall, CEO of CureSearch since 2012, with five years of refining purpose, innovation, and efficiency in the medical research...

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Keira Wrenn: DIPG Survivor

CCTR interviews Emma Wrenn who's daughter Keira is a survivor of DIPG, diffuse intrinsic pontine glioma, a virtually unheard-of experience. Emma...

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Make It Better Agent Ann Graham

CCTR interviews Ann Graham, founder and CEO of MIB Agents, an organization devoted to making the lives of children and young people with osteosarcoma...

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Inside CureFest with Emily Belcher

CCTR interviews Emily Belcher, advocate, event planner, mother of a childhood cancer survivor, and CureFest volunteer, who tells us about the early...

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Zamora Moon: Living with DIPG

CCTR intereviews Marisa Martinez, mom to Zamora Moon, a little 9-year old girl battling DIPG, diffuse intrinsic pontine glioma, arguably one of the...

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BPDCN: Caitlin's Story

CCTR interviews Caitlin Lee (12) and her mom, Kelly about Caitlin's recent diagnosis with BPDCN and course of treatment. Blastic plasmacytoid...

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“Jaime’s Journey–Cancer from the Voice of a Sibling”, by Sharon Wozny

Author Sharon Wozny shares with us her first book for children facing the difficult emotional challenges of having a sibling with cancer and the...

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#KidsCancerPain and the Cancer Knowledge Network

CCTR interviews Dr. Christine Chambers of the Centre for Pediatric Pain Research at IWK Health Center in Nova Scotia, and Dr. Jennifer Stinson, nurse...

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Carson Leslie Foundation and the Golden Toast 2016

Annette Leslie, founder and CEO of Carson Leslie Foundation, talks to us about her son Carson and his book, "Carry Me", his inspirational story of...

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Nancy Keene and Anne Spurgeon discuss new book, Childhood Cancer: A Parent's Guide to Solid Tumor Cancers

CCTR interviews Nancy Keene, well-known writer and advocate for children with cancer, and co-author of the Childhood Cancer, A Parent's Guide to Solid...

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September 1–Go4theGoal at the Golden Niagara Falls

CCTR interviews Beth Stefanacci and Carina Trenka of Go4theGoal, a dynamic support organization for children with cancer based in Cherry Hill, NJ, and...

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The Legislative Landscape of Childhood Cancer Drug Development: Jonathan Agin JD

CCTR interviews Jonathan Agin JD, father of Alexis who perished to brainstem glioma in 2011 and 4 other young children, and official counsel and...

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Michael Esposito: Niagra Falls leads the US for Childhood Cancer Awareness Month

CCTR interviews Michael Esposito, father of five, teacher, and basketball coach, the man responsible for connecting people in his town of Niagra...

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Live from cc-TDI Pediatric Nanocourse 2016

Live from the Children's Cancer Therapy Development Institute, CCTR interviews 4 participants of the 2016 Pediatric Cancer Nanocourse, an introduction...

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Step UP! Action and Awareness: Advocacy with Neal Rourke and Jesse Robinson

CCTR talks with Neal Rourke and Jesse Robinson about the Childhood cancer Awareness Movement and the upcoming September, Childhood Cancer Awareness...

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Dr. Mark Swouweidane: On a Mission to Cure DIPG

CCTR interviews Dr. Mark Souweidane of the Weill Cornell Medical College and pioneering neuro-surgeon in the United States, known especially for the...

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Jenny Mosier, Executive Director of Michael Mosier Defeat DIPG Foundation

Jenny Mosier, co-founder of Michael Mosier Defeat DIPG Foundation, joins CCTalkRadio and discusses her son Michael and his journey with DIPG, and how...

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Driven 2 Make Change: Activism on the road for our kids!

Today's show features Ronnie Duvall, "Driven Change" on facebook, one who truly walks the talk of his values. Ronnie gave up his job and home to...

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Creating Hope: Nancy Goodman

CCTR interviews foremost advocate for children with cancer, lawyer, and mom to Jacob, forever 10, 2009, Nancy Goodman. Nancy brings us news of the...

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Laurie Johnson, Professional Psychic Advisor

CCTR interviews Laurie Johnson, psychic advisor and teacher of the metaphysical arts, who addresses the issue of childhood cancer, and cancer in...

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CCTR6-16: The Ride for DIPG

CCTR interviews Jesse Shumaker, a brave and loving dad who just lost his only child Madelyn 6 months ago to DIPG, the deadliest brain cancer with no...

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Team Ellie from the UK

From the UK, Ellie Waters, 15, joins CCTR to talk about her journey with alveolar rhabdomyosarcoma and life as a teen with cancer; her mum Samantha...

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CCTR Interviews Morgan Platt, 12 yr. old and 5 year survivor of GBM

Morgan Platt, 12 years old, 5 year survivor of GBM from Avon CT tells CCTR about her finishing a fundraiser for her two favorite charities, to the...

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Kathy Riley and We Can Pediatric Brain Tumor Network

Kathy Riley talks to CCTR about We Can Pediatric Brain Tumor Network, which began 20 years ago with the support and camaraderie between mothers of...

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ABC2: Funding Creativity in Brain Cancer Research

Max Wallace, President and CEO of ABC2--Accelerate Brain Cancer Cure, talks about founder and venture capitalist Dan Chase who had been afflicted with...

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cc-TDI: Exciting New Prospects for Children with Cancer (Science)

Today's show features creative solutions to difficulties in treating childhood cancer with the Children's Cancer Therapy Development Institute,...

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Gina Renay and Owie BowWowie

Darkness to light, despair to a single smile...these transformations caused by magical stuffed toy-doggie Owie BowWowie are regular occurrances when...

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Congressman Knight and HRes586, and the Activist Runner's Roundatable 4-21

We are on the road, literally, with Childhood Cancer Talk Radio! Congressman Steve Knight (R-CA-25) joins CCTR to talk about HRes586, National DIPG...

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The Realities of DIPG

Jaime King, mother to Katie(7), aka Katherine the Brave, and Mark Landis, father to Parker (5), describe the realities faced by parents of...

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Dr. Kathy Warren on DIPG, Michael Antonellis of National Brain Tumor Society

CCTR presents Dr. Kathy Warren, top researcher in pediatric neuro-oncology at the Center for Cancer Research at the National Cancer Institute (NCI),...

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CCTR interviews Paul Miller of Littleton CO, advocate and hero for kids with cancer

CCTR asks Paul Miller about his extraordinary commitment to speaking out for children with cancer, and about the truth of our medical research system:...

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Gerry Tye: Father, Advocate for Children with Cancer--Australia's Best

Gerry Tye of Sydney, Australia talks to CCTalkRadio about the experience of an exceptional child lost to an exceptional disease...DIPG is the "Angel...

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CCTalkRadio Presents: Gerry Tye, advocate for kids with cancer

Advocate for children with cancer Gerry Tye shares the experience with his son Talin, diagnosed with DIPG in 2012, and for parents the importance of...

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CCTR Presents George Dahlman of The Children's Cause Cancer Advocacy

George Dahlman talks about the importance of advocacy in affecting change in legislation and the way our Administration, Congress, and Government...

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CCTR Presents Mattie Miracle

Peter Brown and Victoria Sardi-Brown tell the story of how their foundation began in 2009 after the death of their precious boy Mattie, 7, who had...

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CCTR Presents Cannakids and Saving Sophie

CCTR interviews Tracy Ryan, founder and CEO of CannaKids, an organization dedicated to providing the highest quality guidance, care, and cannabis...

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CCTR2-18-2016 Kira Spedale Foundation

Lisa Spedale reveals the heart-wrenching motive for her involvement in one of the most genius technological advancements in the history of...

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New Hope from the U.K. for Brain Cancer

Emma Wren of Alford UK, explains the realities of a DIPG diagnosis for her daughter Keira, and the experimental program with which Keira is involved...

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CCTR interviews Jonathan Agin and Charles Keller MD of CC-TDI

Thursday, Feb. 4 CCTR interviews Jonathan Agin, Development Liaison and General Counsel for the Children's Cancer Therapy Development Institute, or...

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CCTR discusses loss and faith with Lisa DeLong, and how to live, find balance and joy once more.

Lisa Solis DeLong, author, nurse, bereavement facilitator, patient advocate, and last but not least--mom!--joins us for a candid discussion of her...

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CCTR talks with Ellyn Miller of Smashing Walnuts Foundation for pediatric brain tumor research.

Ten-year-old Gabriella Miller was herself a strong advocate for children with cancer, and the inspiration for Smashing Walnuts Foundation; sadly, she...

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CCTR Presents: Jaime King and daughter Katie, Kristine Wetzel of McKenna Claire Foundation

Jaime King describes the difficult experience of the terminal diagnosis for daughter Katie with DIPG, the most aggressive pediatric brain tumor. The...

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About Janet


Blessed with varied interests and an artistic and musical upbringing, Janet had health challenges throughout her young adult life. Despite these she graduated Cum Laude from Wellesley College with an award of distinction for acting, and had also been a champion equestrian. She began a family with her husband Barry later in life, and had finally found happiness with daughter Sophie-Marie (3/12/06) and then baby (Jack 8/30/08). Five weeks after his birth, the family escaped a wildfire in which all worldly possessions were lost. The family relocated in December of 2008 to Agua Dulce CA where they currently reside.

Jack began to have unsettling symptoms at the age of 3; he was taken to Children's Hospital Los Angeles and was diagnosed with DIPG, or diffuse intrinsic pontine glioma, on Friday Oct. 28, 2011, indisputably the darkest experience of Janet's life. The outrage of it made her determined to find the good in the situation, and she asked God to "Put me to work!" After Jack's death, she remained determined to start working to find solutions to DIPG and incorporated Jack's Angels at the end of 2012; the Foundation began its work in 2013. Despite the fact that DIPG is responsible for the majority of brain tumor deaths in children, she had been told there were no solutions for Jack because "the numbers aren't great enough for investors." This remains the primary motivation in her advocacy work, to prioritize children's lives in our medical system in the United States.