Today's show features an interview with Kathy Derr, Co-Founder and Director of Family Engagement for A Kid Again, a national organization with a...
Read moreMariah Olson was diagnosed in 1980 with neuroblastoma at the age of one year, and is a living testament as a survivor to the difficulties that so...
Read moreThis edition of Childhood Cancer Talk Radio gives a personal look at the landscape of childhood cancer advocacy over recent years. For this, I have...
Read moreToday's show is a recap of recent advances in childhood cancer advocacy and reiterates the basic facts about childhood cancer for which we strive to...
Read moreIn this edition of Childhood Cancer Talk Radio, members of the DIPG Advocacy Group Gerry Tye (Syndey, AUS), Katherine Bader (Rhineland, Missouri) and...
Read moreA Class of 2020 graduate from UCLA in anthropology, Rachna Prasad is a working on a Masters program in clinical research at the University of Zurich,...
Read moreMarti Jaenke Dexter tells the story of her youngest daughter of four children, Juliette, described sweetly as her “gift from God.” She...
Read more“After symptoms that appeared suddenly and two visits to the pediatrician, Luke Morin was taken to the Emergency Department at Children’s...
Read more"While we wait," declared Jace Ward from Wamego Kansas, to an NIH Symposium on genomic data sharing in September, 2019, "DIPG won't wait! It won't...
Read moreRicardo Garcia, CEO, Cesare Spadoni, COO, and Jonathan Agin, Head of Patient Advocacy for Oncoheroes Biosciences join us to discuss this relatively...
Read moreThursday, Sept. 26 show features interviews with key individuals with important information about CureFest, the rise of childhood cancer awareness,...
Read moreUpon the diagnosis of his daughter in 2015 with the deadliest pediatric brain cancer DIPG, Philip Manduca, a financier residing in London, UK, was...
Read moreLarry Perfetti, President of Kier's Kidz, a 501(c)3 charitable organization in Highland Park, NJ, dedicated to helping children with cancer and their...
Read moreHow did we get here, with a medical research system teaming with money and activity, but so few solutions and options for deadly cancers, especially...
Read moreFollowing the death of his daughter Shayla in 2009 from Hodgkin's Lymphoma Tom dedicated his entire life to providing non-medical support to children...
Read moreJune 7, 2019 | Mia Brozovich Nacke June 7, 2019 | Mia Brozovich NackeCOMMUNITY OUTREACH, EVENTS, PEDIATRICS, RESEARCH AND INNOVATION.Families who have...
Read moreOur show features a window into the experience of a father, Mark Hyde, who literally chose to go to the ends of the earth for his daughter, honoring...
Read moreSandra Brown joins us on Childhood Cancer Talk Radio from Dillon, South Carolina to share the story of her beautiful, 10 year old granddaughter who is...
Read moreMay 2019 has witnessed important advances in pediatric brain cancer awareness, advocacy, and the fulfillment of a life-time dream by a dedicated...
Read moreCynthia Martucci and Angelina Shao begin internships at cc-TDI, Children's Cancer Therapy Development Institute as undergraduates for the summer of...
Read moreA recent graduate of Syracuse University's School of Photo-Journalism, Moriah Ratner tells the story of the lovely Lola Munoz, a thirteen year old...
Read moreChance Mazzell and his wife Heather share with us the story of their daughter Olivia and the places that DIPG, diffuse intrinsic pontine glioma, has...
Read moreSara's Cure is a grassroots, race-against-time campaign focused on funding critical research to find a cure for Clear Cell Sarcoma. Lissett Bickford,...
Read moreAccording the the Genomics Institute, 84% of dog DNA has human counterparts, so we suffer many of the same diseases, including most cancers. Dogs...
Read moreDenver CO--Morgan Adams Foundation co-founder Joan Slaughter joins us to share this organization's 20 year history of advancing the clinical trial...
Read moreAfter months of frustrating ER visits for high fevers, Adelaide 'Addie' was diagnosed in November 2015 with Hepatoblastoma, a rare pediatric liver...
Read moreFrom a State Tax Measure bringing needed funds to pediatric cancer research, to leading in the country-wide movement for a DIPG Awareness Day,...
Read moreBarbara Saltzman joins us from Palos Verdes CA, home of The Jester & PharleyTM Phund, the charity that grew out of her late son David's...
Read moreThe second edition of Childhood Cancer Talk Radio's Research Series with Children's Cancer Therapy Development Institute features an osteosarcoma...
Read moreSteven Healey shares the inspiration behind the foundation, his beautiful, forever-5 year old daughter Brooke who's life lasted just eight months post...
Read moreDr. Charles Keller, Scientific Director of the Children's Cancer Therapy Development Institute, joins us with Dr. Anju Karki, post-doctoral fellow and...
Read moreJeri Wilson, Executive Director, has been with PCRF (Pediatric Cancer Research Foundation) since September of 2011 and has taken this organization...
Read moreWe follow-up and finish our conversation with Randy Hinton, father to Hayley who was diagnosed with DIPG (brainstem glioma-diffuse intrinsic pontine...
Read moreAs the Chief Executive Officer of Children's Cause for Cancer Advocacy, George Dahlman is responsible for the strategic management and operations of...
Read moreRandy Hinton joins us from Summerville SC to discuss the circumstances surrounding his daughter Hayley's diagnosis with brain cancer and the...
Read moreWendy and Dean Fachon of Rhode Island join us to talk about state legislation, national resolutions and the legacy of their son Neil, making a strong...
Read moreMorally, rationally and in every sensible way, the experience of DIPG, diffuse intrinsic pontine glioma, inspires bereaved parents to fight for others...
Read moreJackson is a boy from Colorado fighting a devastating foe: DSRCT. Desmoplastic Small Round Cell Tumor (sarcoma) is a frequently misdiagnosed, rare...
Read moreDonna Speckhard brings us a sneak-peek of the upcoming docuseries "The Promise" chronicling the experiences of children with cancer and their families...
Read moreThe Gabriella Miller Kids First Research Act, first signed into law in 2014, is perhaps one of the most important pieces of legislation and resulting...
Read moreDIPG is front and center with researchers, devastated by the picture painted by the statistics of this killer of very young children, and with...
Read moreNo matter how much time one may have with a child diagnosed with terminal cancer, the stresses of life can be extreme. Natalie Avila was diagnosed...
Read moreWe get a first-hand look inside the controversial treatment program in Monterrey, Mexico, to which many DIPG families flock with the kind of...
Read moreWhat is it like when there is literally nothing they can do, when your child is ok one day, but after the next might never walk again? Jodi Jacobs...
Read moreMolly Lindquist, CEO of Children's Cancer Therapy Development Institute in Beaverton OR, joins us to share her personal story of cancer survival and...
Read moreThe charitable organization With Purpose, in Minneapolis MN, was founded by Erin Benson in loving memory and trust of her son Sam Lee who perished to...
Read moreDr. Charles Keller, Scientific Director of the Children's Cancer Therapy Development Institute, describes for us in opening the show, the ongoing work...
Read moreLuna Zin joins us from her Utah home to discuss her first book, "The Heart of Luminous", inspired by her research in the childhood cancer community,...
Read moreEllie Waters visits with us from the UK to give us an update on her progress, cancer-free, and also gives a clear picture of the realities of teen...
Read moreTamlin Hall and her mum Kerrilee visit with us to share Tamlin's story of surviving BPDCN, and the new network of hope and support that has grown from...
Read moreChase Jones is a survivor of childhood brain cancer, founder of Vs. Cancer Foundation, and is organizing community leadership around the country for...
Read moreKristen Gillette, Executive Director of the Kortney Rose Foundation in Oceanport, NJ, joins us to discuss the abrupt loss of her daughter Kortney in...
Read moreEmma Wrenn joins us from the UK to discuss her new book about the life of her brave daughter Keira, who was one of a handful of children who pioneered...
Read moreJoshua Allen, Senior Vice President of Research and Development at Oncoceutics joins us to explain a novel group of compounds called imipridones that...
Read moreStacie Sayler of Walla Walla Washington tells the story of a happy family of 5 on a small farm, Eric Sayler the father is a pastor, and mom...
Read moreKirsten Finley and Jamie Franzini, both coincidentally from the same Congressional District in Florida--that of Rep. DeSantis (R-FL-6)--discuss their...
Read moreGinny McLean, Communications and Outreach Director for Swifty Foundation joins us to discuss the Hike 4 Pennies program with hiker Erick Montgomery...
Read moreBoth parents Dean and Wendy Fachon join us to share the story of their son Neil Fachon's diagnosis of DIPG, one of the deadliest pediatric brain...
Read moreWhat would you do if your doctors provided no solutions for your child, when nowhere in your country was hope for survival inferred by treatment?...
Read moreMelissa Castango joins us to share the story of her daughter Zoe, diagnosis with brain cancer and the beginnings of her journey with Zoe's Butterfly...
Read moreHeroes and Angels in Little Rock, AR is the real deal: a small, grassroots organization doing everything humanly and angelically possible to support...
Read moreJim Churchman joins us to share the story of the Smile High Club, a non-profit organization dedicated to putting smiles on faces and hope in the...
Read moreNurse and family confidante Nick Maroulis, and brother of Theodore Vasilis Ntoumas join us to discuss Batten disease and the effects of fatal, rare,...
Read morePaul Melmeyer, Director of Federal Policy for NORD, the National Organization for Rare Disorders,joins us to discuss NORD's advocacy activities at the...
Read moreGerry Tye joins us from Sydney Australia to discuss the changes in the childhood cancer community over the past six years. A father of three boys,...
Read moreA long-time advocate for children with cancer, Paul Miller of Littleton, CO shares with us his story of advocacy through fundraising events, routinely...
Read moreAnn Graham, CEO of MIB Agents--Make-It-Better-Agents--and osteosarcoma survivor, joins us to discuss the great strides in improving outcomes for...
Read moreShane and Shawnee Doherty discuss frankly their experience with their son Hollis who was diagnosed with DIPG in March of 2016. DIPG, diffuse intrinsic...
Read moreTwo-time cancer survivor Steven Giallourakis joins us with his mother Angie to share their experience which inspired the Steven G. AYA Cancer Research...
Read moreThe new children's book "My Dog Named Hope" is about a special girl, her amazing dog, and a family's journey through childhood cancer. The story was...
Read moreAnnette Leslie is a mom who has been through the harrowing experience of losing her son to medulloblastoma in 2010. His extraordinary life and...
Read moreEllie Waters was diagnosed with alveolar rhabdomyosarcoma at the age of 14 and endured the heavy-duty treatments that this frightening disease...
Read moreNicole Vathy, single mom of seven, shares her journey with her youngest, Shawn, who has been diagnosed with diffuse intrinsic pontine glioma. Shawn...
Read moreSuzanne Gwynn has served as a critical care nurse for more than 35 years, in both the United States and Canada. During the first decade of her career,...
Read moreAl Gustafson is on the Advisory Council of the Children's Brain Tumor Tissue Consortium and serves on the Board of Swifty Foundation, among several...
Read moreCaitlin joins us with her mom Kelly to update her progress since treatement for BPDCN, Blastic Plasmacytoid Dendritic Cell Neoplasm, a rare and...
Read moreFrom Monterrey Mexico, childhood cancer advocate Christina Wascher joins the show with Kristoffer Nordstrom, father to 5-year-old Linnea who is...
Read more"Eight years ago, a 15 month-old little boy with platinum blond ringlets and bright blue eyes was diagnosed with high-risk neuroblastoma, a childhood...
Read moreLive from Roy's 100 mi Run for Christopher in Santa Clarita, CA, Roy Wiegand joins us for news on his progress, the support of the local community for...
Read moreSophie Ryan, daughter of Founder and CEO of CannaKids Tracy Ryan, inspired the birth of CannaKids. Sophie was diagnosed at 8 1/2 months old with an...
Read moreProfessionally, Theresa Beech has had 20 years of experience as a space engineer designing satellite mission ground systems. She has worked as a...
Read moreChristina Bouraimi (mother) and Nick Maroulis (nurse) join us on CCTalkRadio from Athens, Greece to tell the story of a brave young man Theodore who...
Read moreOn April 13 2017 Childhood Cancer Talk Radio interviewed Roy Wiegand of Burbank CA, suburb of Los Angeles, a local free-lance musician with an...
Read moreCCTR interviews Elizabeth Psar, an attorney with a focus in Juvenile law now on a mission against DIPG with the Julia Barbara Foundation. The...
Read moreChildhood Cancer Talk Radio interviews Patrick Mahoney from the Office of Advocacy Relations (OAR) at NCI. The March 16 discussion included a brief...
Read moreAmperell Williams joins us on CCTR to talk candidly about her experience with her son, Caleb, who was diagnosed at the age of 5 with T-cell...
Read moreRhodemann Li and Clayton Larsen, co-founders of Vesselon describe the unique blending of two technologies into one platform effectively solving the...
Read moreToday's guest, Danielle Leach, gives the childhood cancer community helpful information about advocacy, being a parent of a child with cancer,...
Read moreThe great adventure that was the 2017 World Marathon Challenge is shared with our listeners in a big-hearted interview with BethAnn Telford, brain...
Read moreBrian Jones, creator of the Run for the Whitehouse for Childhood Cancer on Facebook joins us to describe the beginnings of the program, what it has...
Read moreJenny Mosier, Executive Director of the Michael Mosier Defeat DIPG Foundation joins us to discuss a 50-State Project for DIPG, calling for volunteers...
Read moreCCTR interviews Christopher Winters, Chief of Staff to PA House of Representatives Honorable Member Tom Caltagirone about his extensive experience in...
Read moreCCTR interviews BethAnn Telford, originally from Harrisburg, PA and now living in Fairfax, VA; she is a brain cancer survivor and ultra-distance...
Read morePediatric brain tumors are the leading cause of death in children with cancer, of which DIPG and HGGs (high-grade gliomas) represent a significant...
Read moreCCTR interviews George Dahlman, CEO of the Children's Cause for Cancer Advocacy, the United State's Premier Childhood Cancer Advocacy organization....
Read moreCCTR interviews Laura Thrall, CEO of CureSearch since 2012, with five years of refining purpose, innovation, and efficiency in the medical research...
Read moreCCTR interviews Emma Wrenn who's daughter Keira is a survivor of DIPG, diffuse intrinsic pontine glioma, a virtually unheard-of experience. Emma...
Read moreCCTR interviews Ann Graham, founder and CEO of MIB Agents, an organization devoted to making the lives of children and young people with osteosarcoma...
Read moreCCTR interviews Emily Belcher, advocate, event planner, mother of a childhood cancer survivor, and CureFest volunteer, who tells us about the early...
Read moreCCTR intereviews Marisa Martinez, mom to Zamora Moon, a little 9-year old girl battling DIPG, diffuse intrinsic pontine glioma, arguably one of the...
Read moreCCTR interviews Caitlin Lee (12) and her mom, Kelly about Caitlin's recent diagnosis with BPDCN and course of treatment. Blastic plasmacytoid...
Read moreAuthor Sharon Wozny shares with us her first book for children facing the difficult emotional challenges of having a sibling with cancer and the...
Read moreCCTR interviews Dr. Christine Chambers of the Centre for Pediatric Pain Research at IWK Health Center in Nova Scotia, and Dr. Jennifer Stinson, nurse...
Read moreAnnette Leslie, founder and CEO of Carson Leslie Foundation, talks to us about her son Carson and his book, "Carry Me", his inspirational story of...
Read moreCCTR interviews Nancy Keene, well-known writer and advocate for children with cancer, and co-author of the Childhood Cancer, A Parent's Guide to Solid...
Read moreCCTR interviews Beth Stefanacci and Carina Trenka of Go4theGoal, a dynamic support organization for children with cancer based in Cherry Hill, NJ, and...
Read moreCCTR interviews Jonathan Agin JD, father of Alexis who perished to brainstem glioma in 2011 and 4 other young children, and official counsel and...
Read moreCCTR interviews Michael Esposito, father of five, teacher, and basketball coach, the man responsible for connecting people in his town of Niagra...
Read moreLive from the Children's Cancer Therapy Development Institute, CCTR interviews 4 participants of the 2016 Pediatric Cancer Nanocourse, an introduction...
Read moreCCTR talks with Neal Rourke and Jesse Robinson about the Childhood cancer Awareness Movement and the upcoming September, Childhood Cancer Awareness...
Read moreCCTR interviews Dr. Mark Souweidane of the Weill Cornell Medical College and pioneering neuro-surgeon in the United States, known especially for the...
Read moreJenny Mosier, co-founder of Michael Mosier Defeat DIPG Foundation, joins CCTalkRadio and discusses her son Michael and his journey with DIPG, and how...
Read moreToday's show features Ronnie Duvall, "Driven Change" on facebook, one who truly walks the talk of his values. Ronnie gave up his job and home to...
Read moreCCTR interviews foremost advocate for children with cancer, lawyer, and mom to Jacob, forever 10, 2009, Nancy Goodman. Nancy brings us news of the...
Read moreCCTR interviews Laurie Johnson, psychic advisor and teacher of the metaphysical arts, who addresses the issue of childhood cancer, and cancer in...
Read moreCCTR interviews Jesse Shumaker, a brave and loving dad who just lost his only child Madelyn 6 months ago to DIPG, the deadliest brain cancer with no...
Read moreFrom the UK, Ellie Waters, 15, joins CCTR to talk about her journey with alveolar rhabdomyosarcoma and life as a teen with cancer; her mum Samantha...
Read moreMorgan Platt, 12 years old, 5 year survivor of GBM from Avon CT tells CCTR about her finishing a fundraiser for her two favorite charities, to the...
Read moreKathy Riley talks to CCTR about We Can Pediatric Brain Tumor Network, which began 20 years ago with the support and camaraderie between mothers of...
Read moreMax Wallace, President and CEO of ABC2--Accelerate Brain Cancer Cure, talks about founder and venture capitalist Dan Chase who had been afflicted with...
Read moreToday's show features creative solutions to difficulties in treating childhood cancer with the Children's Cancer Therapy Development Institute,...
Read moreDarkness to light, despair to a single smile...these transformations caused by magical stuffed toy-doggie Owie BowWowie are regular occurrances when...
Read moreWe are on the road, literally, with Childhood Cancer Talk Radio! Congressman Steve Knight (R-CA-25) joins CCTR to talk about HRes586, National DIPG...
Read moreJaime King, mother to Katie(7), aka Katherine the Brave, and Mark Landis, father to Parker (5), describe the realities faced by parents of...
Read moreCCTR presents Dr. Kathy Warren, top researcher in pediatric neuro-oncology at the Center for Cancer Research at the National Cancer Institute (NCI),...
Read moreCCTR asks Paul Miller about his extraordinary commitment to speaking out for children with cancer, and about the truth of our medical research system:...
Read moreGerry Tye of Sydney, Australia talks to CCTalkRadio about the experience of an exceptional child lost to an exceptional disease...DIPG is the "Angel...
Read moreAdvocate for children with cancer Gerry Tye shares the experience with his son Talin, diagnosed with DIPG in 2012, and for parents the importance of...
Read moreGeorge Dahlman talks about the importance of advocacy in affecting change in legislation and the way our Administration, Congress, and Government...
Read morePeter Brown and Victoria Sardi-Brown tell the story of how their foundation began in 2009 after the death of their precious boy Mattie, 7, who had...
Read moreCCTR interviews Tracy Ryan, founder and CEO of CannaKids, an organization dedicated to providing the highest quality guidance, care, and cannabis...
Read moreLisa Spedale reveals the heart-wrenching motive for her involvement in one of the most genius technological advancements in the history of...
Read moreEmma Wren of Alford UK, explains the realities of a DIPG diagnosis for her daughter Keira, and the experimental program with which Keira is involved...
Read moreThursday, Feb. 4 CCTR interviews Jonathan Agin, Development Liaison and General Counsel for the Children's Cancer Therapy Development Institute, or...
Read moreLisa Solis DeLong, author, nurse, bereavement facilitator, patient advocate, and last but not least--mom!--joins us for a candid discussion of her...
Read moreTen-year-old Gabriella Miller was herself a strong advocate for children with cancer, and the inspiration for Smashing Walnuts Foundation; sadly, she...
Read moreJaime King describes the difficult experience of the terminal diagnosis for daughter Katie with DIPG, the most aggressive pediatric brain tumor. The...
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Blessed with varied interests and an artistic and musical upbringing, Janet had health challenges throughout her young adult life. Despite these she graduated Cum Laude from Wellesley College with an award of distinction for acting, and had also been a champion equestrian. She began a family with her husband Barry later in life, and had finally found happiness with daughter Sophie-Marie (3/12/06) and then baby (Jack 8/30/08). Five weeks after his birth, the family escaped a wildfire in which all worldly possessions were lost. The family relocated in December of 2008 to Agua Dulce CA where they currently reside.
Jack began to have unsettling symptoms at the age of 3; he was taken to Children's Hospital Los Angeles and was diagnosed with DIPG, or diffuse intrinsic pontine glioma, on Friday Oct. 28, 2011, indisputably the darkest experience of Janet's life. The outrage of it made her determined to find the good in the situation, and she asked God to "Put me to work!" After Jack's death, she remained determined to start working to find solutions to DIPG and incorporated Jack's Angels at the end of 2012; the Foundation began its work in 2013. Despite the fact that DIPG is responsible for the majority of brain tumor deaths in children, she had been told there were no solutions for Jack because "the numbers aren't great enough for investors." This remains the primary motivation in her advocacy work, to prioritize children's lives in our medical system in the United States.