Kortney Rose Foundation Pioneers Fundraising for Pediatric Brain Cancer

Kristen Gillette, Executive Director of the Kortney Rose Foundation in Oceanport, NJ, joins us to discuss the abrupt loss of her daughter Kortney in 2006 to a deadly brain tumor and the change of the landscape of childhood cancer research since then. Joining us in Segment II is Eric Montgomery, currently hiking the Pacific Crest Trail to help raise awareness and raise funds for the first multi-institutional research project for DIPG and HGG, High Grade Gliomas, employing the most advanced genomic sequencing techniques in precision medicine. Kortney Rose Foundation's support for CBTTC, Children's Brain Tumor Tissue Consortium, with its home at Children's Hospital Philadelphia,has been crucial to the eventual development of this collaborative project. Eric Montgomery's project is called Hike4Pennies, at web address fourpennies.org where this project is explained in detail.

Here, you may refer also to our 4-26-2018 podcast and article for more information about Hike4Pennies.


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About Janet

Blessed with varied interests and an artistic and musical upbringing, Janet had health challenges throughout her young adult life. Despite these she graduated Cum Laude from Wellesley College with an award of distinction for acting, and had also been a champion equestrian. She began a family with her husband Barry later in life, and had finally found happiness with daughter Sophie-Marie (3/12/06) and then baby (Jack 8/30/08). Five weeks after his birth, the family escaped a wildfire in which all worldly possessions were lost. The family relocated in December of 2008 to Agua Dulce CA where they currently reside.

Jack began to have unsettling symptoms at the age of 3; he was taken to Children's Hospital Los Angeles and was diagnosed with DIPG, or diffuse intrinsic pontine glioma, on Friday Oct. 28, 2011, indisputably the darkest experience of Janet's life. The outrage of it made her determined to find the good in the situation, and she asked God to "Put me to work!" After Jack's death, she remained determined to start working to find solutions to DIPG and incorporated Jack's Angels at the end of 2012; the Foundation began its work in 2013. Despite the fact that DIPG is responsible for the majority of brain tumor deaths in children, she had been told there were no solutions for Jack because "the numbers aren't great enough for investors." This remains the primary motivation in her advocacy work, to prioritize children's lives in our medical system in the United States.